I know I haven't posted in awhile but I'm hoping to get back in the groove. We've had a crazy month. We had a cardiologist appointment today. Lucy has been gaining awesome weight. She made it to the 1st percentile. She hates her NG tube but it's doing its job. She keeps the tube in all the time but we only use it at night. We go back to see him in a month and from there we'll probably schedule her full repair. You think we'd be used to it by now but it doesn't get easier. I think the anticipation is going to drive us insane. We've also been potty training Jack which is a lovely adventure in itself. It's going to be a loooong month.
Jack is currently obsessed with Blue's Clues. It's actually motivated him to talk a lot more.
Classic Hazel. This girl does not get enough attention. That's what she'd tell you anyway. She loves to scream. She gets it from Jack. She's going to be all drama I know it. Of all my kids she seems to like me the best. Which can be good or bad. The mornings with her are the hardest. There is just no time to sit and play which is all she wants.
Hazel adores Jack. Sometimes they will just sit and laugh at each other. It's the funniest thing I've ever seen.
Hazel trying to teach Lucy how to be a big girl.
I can't believe I haven't posted since Lucy got her NG tube. This was her after she came home from the hospital this last time. (She was in the hospital twice last month.) Those extra circle stickers are from being on oxygen when she was at the hospital.
Both girls and Jack love this Jessie doll.
You grow girl!
She can barely touch and it needs to be raised for Hazel.
This is what we've rigged to give Lucy her feeding at night. She just gets to eat normal during the day and at night she gets a continuous feed. One perk is that she will often sleep through the night. We still have to get up to change the milk every few hours.
Chuck's happy.
3 comments:
Love all the photos! So glad Miss Lucy is gaining so much weight. You have the cutest little girls and I hope all the best for both of them. We'll continue to keep you guys in our prayers.
Lucy really does look so much bigger!! Yay!! Your place is decorated so cute too :) So I feel so behind...i have read on facebook that lucy has been in the hospital but I'm not sure whey? Hope she is doing better whatever it is. Love you guys!
Your girls are so cute! so is Jack!
I'm so glad Lucy is gaining weight! I use those same circle tape for Whitney! It works really good to hold the nasal canula (oxygen) plus NG tube!
The company we get our feeding supplies from gave us a pole, it works but I hate the hospital feeling of it! Your set up is very creative though!
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