Thursday, August 11, 2011

...and again and again and again

Lucy had such a great day yesterday. Every surgery I go through a period where I don't think my child is coming back. It's the worst feeling in the world. Yesterday Lucy came back to us. They brought her this crazy toy with fiber optic lights. We thought it looked like repunzel's glowing hair. She totally got it too and would laugh when we'd put it on our heads.(as much as you can laugh when you're intubated.) We think she'll be extubated today. Yeah.

Smiley girl.

Gammy with Repunzel hair.

So here's the general update as best I can give it. We were initially told Lucy would be having another surgery yesterday. We were told this by her surgeon. The man was out of town yesterday so we're not sure why he would say that to us. They did an MRI to see if they could get to the right Collateral through her side. They decided the collateral may not be as big as they thought and may wait a couple of months to do this next surgery. Personally I think this is a bunch of crap and I'm anxious for her surgeon to get back so we can chat. Lucy is still in severe heart failure. We thought that at least one of the three things the surgeon was planning on accomplishing had been successful but the results of the MRI show that that didn't even work correctly. (insert swear word of choice here)
In other news my cousin Noelle is sending her newborn baby Emily into surgery as we speak. Same heart defect as Lucy. They are even in the same ICU. They could use some prayers today. If you want to read their story their blog is in my sidebar.(Because Nice Matters)
It's in the simple peaceful moments like yesterday that I know my Heavenly Father is aware of our struggles and wants to bless us. I know a lot of prayers have gone up for Lucy and for Emily. I have seen so many miracles this year and I'm praying for some for my cousin too.


Katie said...

How I hope you'll get some straight talk. It must be so frustrating. I'm so glad she's "back." Poor baby girl. Gammy looks cute with the pink hair. :) Hang in there.

Carlie said...

awesome toy! It's good to see Lucy's little eyes again. I hope you give that dr. a piece of your mind! Love you guys. You're a good cousin, Liza. I've added Emily to our prayers.

Tom/Tabitha said...

I hope you get some answers! hugs and prayers. We miss you. Thank you for sharing pictures!

Christin Foscarini said...

I'm SO glad you and Lucy were able to have some laughs! Love you all and hope you hear from your surgeon soon. Again, let me know if I can do anything for your family.