I don't even know where to start. Two weeks ago today Lucy was admitted to the ICU and two days ago she had her third open heart surgery and a cardiac cath. We spent 14 hours on Wednesday in the waiting room. They kept Lucy's chest open until today. While they closed her chest they also did a echocardiogram by putting something down her trachea. I don't get it. Her open heart didn't accomplish everything that they wanted so we have another open heart in maybe a week. They won't know for sure until after her CT scan. Although we're pretty certain.
Lucy's has had a number of setbacks but is doing okay. She had a fever after surgery and got up to 104 for most of the day yesterday. It broke during the night last night. They found an infection from her PICC line. She's going to need an IV of antibiotics for 6 weeks. Luckily she could home with that. They had to bring in the wound team to look as Lucy's neck. She's developed sores under her neck probably from all the swelling she's had. She also lost her pulse in her leg for awhile and her leg turned ice cold. They found out she has a blot clot and are giving her blood thinners for it.
Right now is such a difficult part of recovery. It's slow and feels like we're getting no where. I've learned I can't look too far ahead. One day at a time. Our new motto.