Saturday, August 13, 2011

Going ons

So Hazel has this weird long piece of hair in front. I finally caved and cut it. She's been having a really rough time with Lucy gone. Today I showed her pictures of Lucy and she gave them kisses. So sweet. The other night I burst into tears when I was putting Hazel down to sleep. She reached out toward where Lucy has been sleeping and started screaming. She usually does okay with Lucy gone but this time has been a lot harder. When Lucy initially was admitted Hazel was really super clingy when she'd see me. Now she hits me in the face or scratches me. Ive never heard of a one year old being so violent. Hazel has started walking a little but mostly walks around on her knees. It's so funny.

This picture was taken on Friday, 9 days post op.

That thing on her head is called CPAP and she hates it almost as much as the ventilator. It's still helping her breathe a lot.

A lot of people have asked us when we'll be going home. The truth is, I have absolutely no idea. We don't know when her next surgery is going to be. They are starting to lead us to believe it will be a few more months. We don't know if they are going to keep her here as long as she's in heart failure. If so, we'll probably be here awhile still.

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