Lucy has had a rough day today. Eliza says she's been prodded and poked all day. On top of that, she decided she was too lazy to eat all of her bottle, too. So the feeding tube is back in.
She is opening her eyes more, but they look so sad. I'm hoping to cheer her up with some Backyardigans therapy. That's not quite working. Plan B involves oxycodone and some awesome dance moves. We'll see which one has the greatest effect.
We've officially moved out of the PICU and onto the floor. Compared to the PICU, this is deluxe! We have our own tv with DVD player, a BED for mom/dad/gammy to sleep in at nights (it's my turn tonight, so this is good timing!), and permission to eat and use cell phones. We still don't know how long we'll be here, but Lucy is definitely getting closer to being ready.
She had an echocardiogram today. They told Eliza the reason for her oxygen saturations being so much lower than expected. It does involve blood mixing somewhere (it wasn't clear to Eliza where), but it should resolve with time and probably a trip to the cath lab. But they won't take her back to the cath lab for a few more months.
So this isn't the end.
This has obviously been an extremely hard time for Eliza and I. But in spite of the difficulty, we have felt relief knowing that there are friends and family, and complete strangers, praying and fasting for Lucy and our little family. We appreciate it, and can feel and see the effects of those prayers.
We are so grateful to Pam (Eliza's mom) for practically moving out to Kansas City when the girls were born. She insists on being here for all the big stuff, and she's usually here for all the small stuff, too. And she still takes one of the night shifts whenever she's here (in fact, I just found out that she is going to sleep at the hospital tonight. It really is a coveted job now that we're in the Hilton)!
And with Gammy being in Missouri all the time, that means she's not in Utah with her hubby and other kiddies. We appreciate their Gammy sacrifice.
And last week would have been almost impossible without my parents here watching the kids and cleaning the house daily. Thank you!
Well, a combination of Backyardigans and oxycodone put Lucy to sleep. I guess the dance moves will have to wait until later...