These first three pictures are from yesterday and the last one was from today. We were able to hold her and feed her and she did really well. Then last night she started grunting with every breath. It lasted for several hours. She was awake but totally unresponsive. When you looked at her she looked right through you. I waved my fingers in front of her eyes and ... nothing. I hated it. They put her back on the resperator and for the last 24 hours she's been out. She hasn't been able to eat again because she had a bloody stool. Hopefully tomorrow she'll be able to eat. I haven't been too stressed about everything. I think it's mostly because I'm running on adrenaline. It's when all the craziness dies down that you really feel it. Chuck's feeling it now. On top of everything he still has responsibilities at school. We're not sure how he is going to work it all out. She had an ultrasound of her heart and things are looking good. The surgery did what they wanted it to. This is a huge relief to all of us. She's taking her time getting better but she'll get there. She's just teaching mom and dad a little patience and faith.
4 comments:
I included Lucy in my fast yesterday- I hope she continues to heal and do well
Hang in there guys. I'm sorry it's such a roller coaster ride. It's good to see you holding her Liza. I sent more socks! I'm sure mom stocked you up already, but I figure she can't have too many, and she has a sister to share with. The cousins made cards and after I sent the package Halle handed me one that I guess I missed. It's to you, Liza. The rest were for Lucy and she didn't want you to feel left out. She's so empathetic like her aunty liza. It's no wonder I get you two confused. Love you guys!
That must be so frustrating to have her be unresponsive. Hope things just get better from here. What is that on her head? It looks like it is meant to be some sort of hat? She is a doll. Prayers going out to all of you!
It's called a sugar bear, I think. They use it to keep her head warm. She loves it.
Post a Comment